CHARGE Syndrome

Oh CHARGE Syndrome, I never wanted to know about you, but now I do and I want to share everything about you with the whole entire world. So here are some links to a few websites with all the information about CHARGE and some of the other conditions that our little guy has.

CHARGE Syndrome Foundation (check this website out, donate if you can. This foundation has been a God send to our family and so many others. They do great things!)

CHARGE Syndrome – US National Library of Medicine

American Heart Association 

Info on Colobomas

Laryngomalacia Info

Feeding Tube Awareness Foundation

Tracheostomy Info